Warm Breeze ~ Haiku

Warm breeze feathers me
Erases chill bumps from skin
Resting in the shade

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It will feel better when it stops hurting

I remember my grandpa saying that when I was little. If I called right now to whine about my back, he’d probably say the same thing. And he’d be right.

A pinched nerve due to herniated discs is no fun, but neither is it the end of the world. Most people have a good shot at recovery. Painkillers, muscle relaxers, cortisone injections, physical therapy, chiropractic care, and a handful of therpy options, when utilized properly, bring relief in four to six weeks.

Valium is on my agenda this weekend. The Curious Case of Benjamen Button is here from Netflix, as well as Coraline, so that may be interesting once the Valium kicks in.

Pain has been a constant for most of my life. I thought for a long time that it was fibromyalgia, and that could be. However, the more I learn about Sensory Processing Disorder, the more I realize that my sensitivity to pain could be related to that.

My family would tell you I always complained about things hurting. It got to be that they were only concerned when there was blood, bruising, or they saw an injury happen. That used to upset me something fierce, but now I understand. Of all the times something hurt, only a few pains were worthy of attention. Recognizing my feelings and fears would have been better than brushing them off, but I think the lack of education about SPDs in the 1980s and 90s had a lot to do with their handling of it.

Playing ice hockey for the past year and a half seems to have eased many of my aches and pains. Sitting at the computer for hours on end has the opposite effect. I haven’t been able to skate since May because of my back, so I’m worried about the random aches returning.

I also wonder how a nuero-typical person would deal with my current situation. One of the guys I skated with at the beginning of the summer session had the same herniations as me at about the same time. When I saw him last, he was lacing up to go skate (just skate-not play) with his son. I am nowhere near that level of recovery. It seems like I always heal slower than people with similar injuries. Fibromyalgia or sensory issue? I don’t know. It’s probably both.

My daughter recently started complaining about things hurting. I can’t tell if she’s really in pain, or if she is trying to get attention. Mommy hurts, so The Munchie clearly must too, right? I remember being told I was just trying to get attention when I was her age. Telling the difference is difficult.

Well, it’s time to go pick up that Valium. Someone has just upset me, so I’m angry. Not helpful. There is SO much more I want to say at the moment, but I can’t. I’ll avoid the issue until 8 can properly address it. So there. (It’s my blog, so I’m allowed to be snarky once in a while!)

So… have a good weekend.

Why “Deadliest Catch” got to me…

I’m melancholy tonight. “Deadliest Catch” is waiting for me on the DVR, yet I can’t seem to watch it. I won’t be able to until tomorrow night now, as it’s going to be too much for my kids. The Dudeling likes the show about the boats, and The Munchie is pretty darned sensitive. In this case, I’ve gotten to be pretty sensitive.

Captain Phil Harris of the F/V Cornelia Marie became my favorite rather quickly. His rough, bristly exterior belied the depth of character beneath. Cliché, maybe, but true. For every bleeped word, his eyes told a deeper story, a story of pain, pride, and love for those he called family. For me, his spirit was epitomized the moment he learned that his son, Jake Harris, had a drug addiction.

Anyone who follows the show knows that Jake has been stubborn, outspoken, ambitious, and, well, a bit lazy. He and another Jake in the fleet (Jake Anderson of the F/V Northwestern) played boat swap for a while to help them learn their places. Upon his return, Capt. Phil was thrilled to see him. It didn’t take long until it was back to normal with Jake fighting with his brother Josh. It seemed like nothing was going to change.

Then Phil caught Jake stealing pills. The ensuing argument was ugly, uncomfortable to watch. Phil told Jake he never wanted to see him again. The rant ended when Jake leaned over and said, “I’m an addict.”

Earlier in the season, Phil told the camera he knew he wouldn’t be around a long time, that he’d done every drug known to mankind, that it caught up to him. He smoked at least nine packs of cigarettes a day and was lucky to have survived a pulmonary embolism two years ago. So when Jake let go of his secret, you could see the pain in Phil’s eyes. The memories. The man who, only moments earlier, had swore he never wanted to see his son again, told Jake, “I’ll go with you” to rehab. He was the dad again, one who wanted to make it right for his kid.

Real life drama. This time, the drama matters. Sure, fans of the show are grieving Phil’s passing. Sure, the producers edited hours of video to show things how they wanted. Sure, there’s a lot that we didn’t see. But what sets this show apart is the no-holds-barred rawness of real life. These people may live an extraordinary way of life, but they are still just like us. They are parents and kids, brothers and friends. They reflect the workings of our lives and relationships.

“Deadliest Catch” got to me this season. No doubt about it. But you know what? Sometimes, a punch in the emotional gut is just what we need.

Remember to appreciate the people who matter to you. Let them know how much they mean to you. You never know what the next day brings. You never know.

Another autism blogger

First, I just want to thank people for their support! I’ve been getting some great feedback!

I found another autism blogger with “My Autistic Life”: http://myautisticlife.wordpress.com I really like yesterday’s post called “Achieving with Autism”: http://myautisticlife.wordpress.com/2010/07/12/achieving-with-autism/

More to come about other things soon. A class started for me today (“Introduction to Audio”), I finished a project last night, my kids have been rambunctious, and oh yeah, there’s that herniated disc thing in my back. But hey, it could be far worse, so I’ll only complain a little. 😉

Thanks for your time today!

Egocentric much?

Many people with Asperger’s Syndrome (AS) are seen as being egocentric. Or aloof. Or arrogant. There’s a distinctive tendency to focus on one’s own experience, sometimes to the exclusion of everyone else. As one of the hallmark traits of AS, this is a social difficulty that has had a profound effect on my life. In my case, it’s more subtle, but it’s had no less impact than on people like my brothers, both of them social misfits.

I won’t speak to my brothers’ experiences right now–Deep Thought (the younger brother) told me he’d be interested in guest blogging later–but I can speak to mine. I’ve never been a social butterfly, but I can talk to people. Then again, that’s often the problem. I can talk to people. With? Well… Read the rest of this entry »

Mattel picking on the little guys!

Mattel is going nuts over a small company that sells pediatric therapy tools. Why? Because Super Duper Publications had several products that had the word “Say” in their titles. Mattel tried to block Super Duper’s attempts to trademark several items because they claimed it infringed upon their trademarked toys. You know, the “See ‘N Say” toys. Super Duper’s products, geared for speech therapy use, had names like “Sort and Say,” “Fish and Say,” “Fold and Say,” and “See It! Say It!”

A short history is available at the “Speak Up for Say!” website: http://www.speakupforsay.com/History.php

I plan to gather more information about this. When I do, I’ll be sure to post it. There are various calls to action, the most prominent being to contact Mattel through traditional methods, as well as through Facebook. I’ll provide that information soon. Thanks.

Evaluation: Part Two

This and the next two updates to The Munchie’s evaluation process will be short. Her cognitive evaluation was yesterday, and it was just her and “Miss C,” the doctor who met with Xife (the husband) and me in June. To The Munchie, it was all fun stuff. She told me about a doll house, but that’s all I could understand from what she recalled. That’s okay. Miss C told me she does the evaluation using games, asking questions, and such. All I know is that The Munchie laughed and laughed–her happy-relaxed laughter, not her nervous laugh. She was a happy camper.

There are three more appointments. She will have a speech evaluation, O.T. (occupational therapy) evaluation, and one more hour-long appointment just before Xife and I meet with the team to discuss their findings. There are clear delays, as well as what might be considered “typical” (if such a thing exists) autistic behaviors.

My question, open to readers, is this: If you (or someone you care for) have gone through an evaluation process, what was it like? How did having “answers” have an impact upon your life?

Feel free to comment and discuss on this thread. Just keep it PG, please. I’ll be watching! 😉